Adolescents and cancer

Alvarez, E., Keegan, T., Johnston, E. E., Haile, R., Sanders, L., Saynina, O., & Chamberlain, L. J. (2017). Adolescent and young adult oncology patients: Disparities in access to specialized cancer centers. Cancer, 123(13), 2516-2523. doi: 10.1002/cncr.30562

Barnett, M., McDonnell, G., DeRosa, A., Schuler, T., Philip, E., Peterson, L., . . . Ford, J. S. (2016). Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review. J Cancer Surviv, 10(5), 814-831. doi: 10.1007/s11764-016-0527-6

Bell, C. J., Bell, R. A., Zebrack, B., Kato, I., Morse, A., & Borinstein, S. C. (2018). Measuring Development of Adolescent and Young Adult Cancer Patients: An Integrative Review of Available Instruments. J Adolesc Young Adult Oncol. doi: 10.1089/jayao.2017.0127

Bellizzi, K. M., Smith, A., Schmidt, S., Keegan, T. H., Zebrack, B., Lynch, C. F., . . . Group, A. a. Y. A. H. O. a. P. E. A. H. S. C. (2012). Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer, 118(20), 5155-5162. doi: 10.1002/cncr.27512

Brinkman, T. M., Li, C., Vannatta, K., Marchak, J. G., Lai, J. S., Prasad, P. K., . . . Krull, K. R. (2016). Behavioral, Social, and Emotional Symptom Comorbidities and Profiles in Adolescent Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. J Clin Oncol, 34(28), 3417-3425. doi: 10.1200/JCO.2016.66.4789

Brinkman, T. M., Zhu, L., Zeltzer, L. K., Recklitis, C. J., Kimberg, C., Zhang, N., . . . Krull, K. R. (2013). Longitudinal patterns of psychological distress in adult survivors of childhood cancer. Br J Cancer, 109(5), 1373-1381. doi: 10.1038/bjc.2013.428

Cancer in adolescents and young adults. (2016). New York, NY: Springer Berlin Heidelberg.

Casillas, J., Syrjala, K. L., Ganz, P. A., Hammond, E., Marcus, A. C., Moss, K. M., . . . Friedman, D. L. (2011). How confident are young adult cancer survivors in managing their survivorship care? A report from the LIVESTRONG™ Survivorship Center of Excellence Network. J Cancer Surviv, 5(4), 371-381. doi: 10.1007/s11764-011-0199-1

Crom, D. B. (2009). "I think you are pretty; i don't know why everyone can't see that": reflections from a young adult brain tumor survivor camp. J Clin Oncol, 27(19), 3259-3261. doi: 10.1200/JCO.2009.22.1978

Druss, B., & Pincus, H. (2000). Suicidal ideation and suicide attempts in general medical illnesses. Arch Intern Med, 160(10), 1522-1526. 

Epstein, I. (2004). Adventure therapy: a mental health promotion strategy in pediatric oncology. J Pediatr Oncol Nurs, 21(2), 103-110. doi: 10.1177/1043454203262684

Giese-Davis, J., Bliss-Isberg, C., Carson, K., Star, P., Donaghy, J., Cordova, M. J., . . . Spiegel, D. (2006). The effect of peer counseling on quality of life following diagnosis of breast cancer: an observational study. Psychooncology, 15(11), 1014-1022. doi: 10.1002/pon.1037

Gill, E., Goldenberg, M., Starnes, H., & Phelan, S. (2016). Outdoor adventure therapy to increase physical activity in young adult cancer survivors. J Psychosoc Oncol, 34(3), 184-199. doi: 10.1080/07347332.2016.1157718

Grasso, D. J., Joselow, B., Marquez, Y., & Webb, C. (2011). Trauma-focused cognitive behavioral therapy of a child with posttraumatic stress disorder. Psychotherapy (Chic), 48(2), 188-197. doi: 10.1037/a0023133

Group, A. a. Y. A. O. P. R. (2006). Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer (pp. 19): U.S Department of Health and Human Services
National Institutes of Health
National Cancer Institute
Livestrong Young Adult Alliance

Hughes, N., Williams, J., & Shaw, C. (2017). Supporting the psychological needs of teenagers and young adults during cancer treatment: a literature review. British Journal of Nursing (Oncology Supplement), 26(4), S4-S10. 

Hølge-Hazelton, B., Timm, H. U., Graugaard, C., Boisen, K. A., & Sperling, C. D. (2016). "Perhaps I will die young." Fears and worries regarding disease and death among Danish adolescents and young adults with cancer. A mixed method study. Support Care Cancer, 24(11), 4727-4737. doi: 10.1007/s00520-016-3322-z

Jones, S. M., Ziebell, R., Walker, R., Nekhlyudov, L., Rabin, B. A., Nutt, S., . . . Chubak, J. (2017). Association of worry about cancer to benefit finding and functioning in long-term cancer survivors. Support Care Cancer, 25(5), 1417-1422. doi: 10.1007/s00520-016-3537-z

KANDLER, L. UNDERSTANDING THE PSYCHOSOCIAL IMPACT OF CANCER IN ADOLESCENCE AND YOUNG ADULTHOOD: A MIXED-METHODS ASSESSMENT OF THE PERSPECTIVES OF PATIENTS, SURVIVORS, AND HEALTHCARE PROFESSIONALS  

Kaye, E. C., Brinkman, T. M., & Baker, J. N. (2017). Development of depression in survivors of childhood and adolescent cancer: a multi-level life course conceptual framework. Support Care Cancer, 25(6), 2009-2017. doi: 10.1007/s00520-017-3659-y

Keegan, T. H., Lichtensztajn, D. Y., Kato, I., Kent, E. E., Wu, X. C., West, M. M., . . . Group, A. H. S. C. (2012). Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J Cancer Surviv, 6(3), 239-250. doi: 10.1007/s11764-012-0219-9

Kwak, M., Zebrack, B. J., Meeske, K. A., Embry, L., Aguilar, C., Block, R., . . . Cole, S. (2013a). Prevalence and predictors of post-traumatic stress symptoms in adolescent and young adult cancer survivors: a 1-year follow-up study. Psychooncology, 22(8), 1798-1806. doi: 10.1002/pon.3217

Kwak, M., Zebrack, B. J., Meeske, K. A., Embry, L., Aguilar, C., Block, R., . . . Cole, S. (2013b). Trajectories of psychological distress in adolescent and young adult patients with cancer: a 1-year longitudinal study. J Clin Oncol, 31(17), 2160-2166. doi: 10.1200/JCO.2012.45.9222

Lazor, T., Tigelaar, L., Pole, J. D., De Souza, C., Tomlinson, D., & Sung, L. (2017). Instruments to measure anxiety in children, adolescents, and young adults with cancer: a systematic review. Support Care Cancer, 25(9), 2921-2931. doi: 10.1007/s00520-017-3743-3

Lu, D., Fall, K., Sparén, P., Ye, W., Adami, H. O., Valdimarsdóttir, U., & Fang, F. (2013). Suicide and suicide attempt after a cancer diagnosis among young individuals. Ann Oncol, 24(12), 3112-3117. doi: 10.1093/annonc/mdt415

McDonnell, G. A., Salley, C. G., Barnett, M., DeRosa, A. P., Werk, R. S., Hourani, A., . . . Ford, J. S. (2017). Anxiety Among Adolescent Survivors of Pediatric Cancer. J Adolesc Health, 61(4), 409-423. doi: 10.1016/j.jadohealth.2017.04.004

Merighi, J. R. (2016). Handbook of oncology social work: Psychosocial care for people with cancer. Soc Work Health Care, 55(6), 481-484. doi: 10.1080/00981389.2016.1162260

Merluzzi, T. V., Philip, E. J., Heitzmann Ruhf, C. A., Liu, H., Yang, M., & Conley, C. C. (2018). Self-efficacy for coping with cancer: Revision of the Cancer Behavior Inventory (Version 3.0). Psychol Assess, 30(4), 486-499. doi: 10.1037/pas0000483

Nass, S. J., Beaupin, L. K., Demark-Wahnefried, W., Fasciano, K., Ganz, P. A., Hayes-Lattin, B., . . . Smith, A. W. (2015). Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop. Oncologist, 20(2), 186-195. doi: 10.1634/theoncologist.2014-0265

Norton, C. L., Tucker, A., Russell, K. C., Bettmann, J. E., Gass, M. A., Gillis, H. L., & Behrens, E. (2014). Adventure therapy with youth. Journal of Experiential Education, 37(1), 46-59. 

Park, E. M., & Rosenstein, D. L. (2015). Depression in adolescents and young adults with cancer. Dialogues Clin Neurosci, 17(2), 171-180. 

Pearson, J. (1989). A wilderness program for adolescents with cancer. J Assoc Pediatr Oncol Nurses, 6(2), 24-25. doi: 10.1177/104345428900600214

Prasad, P. K., Hardy, K. K., Zhang, N., Edelstein, K., Srivastava, D., Zeltzer, L., . . . Krull, K. (2015). Psychosocial and Neurocognitive Outcomes in Adult Survivors of Adolescent and Early Young Adult Cancer: A Report From the Childhood Cancer Survivor Study. J Clin Oncol, 33(23), 2545-2552. doi: 10.1200/JCO.2014.57.7528

Rosenberg, A. R., Macpherson, C. F., Kroon, L., & Johnson, R. (2013). Rethinking Adherence: A Proposal for a New Approach to Risk Assessment. J Adolesc Young Adult Oncol, 2(2), 83-86. doi: 10.1089/jayao.2012.0025

Rosenberg, R. S., Lange, W., Zebrack, B., Moulton, S., & Kosslyn, S. M. (2014). An outdoor adventure program for young adults with cancer: positive effects on body image and psychosocial functioning. J Psychosoc Oncol, 32(5), 622-636. doi: 10.1080/07347332.2014.936652

Smith, A. W., Seibel, N. L., Lewis, D. R., Albritton, K. H., Blair, D. F., Blanke, C. D., . . . Zebrack, B. J. (2016). Next steps for adolescent and young adult oncology workshop: An update on progress and recommendations for the future. Cancer, 122(7), 988-999. doi: 10.1002/cncr.29870

Stevens, B., Kagan, S., Yamada, J., Epstein, I., Beamer, M., Bilodeau, M., & Baruchel, S. (2004). Adventure therapy for adolescents with cancer. Pediatr Blood Cancer, 43(3), 278-284. doi: 10.1002/pbc.20060

Trevino, K. M., Abbott, C. H., Fisch, M. J., Friedlander, R. J., Duberstein, P. R., & Prigerson, H. G. (2014). Patient-oncologist alliance as protection against suicidal ideation in young adults with advanced cancer. Cancer, 120(15), 2272-2281. doi: 10.1002/cncr.28740

Török, S., Kökönyei, G., Károlyi, L., Ittzés, A., & Tomcsányi, T. (2006). Outcome effectiveness of therapeutic recreation camping program for adolescents living with cancer and diabetes. J Adolesc Health, 39(3), 445-447. doi: 10.1016/j.jadohealth.2005.12.018

Zebrack, B., Bleyer, A., Albritton, K., Medearis, S., & Tang, J. (2006). Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer, 107(12), 2915-2923. doi: 10.1002/cncr.22338

Zebrack, B., Kwak, M., & Sundstrom, L. (2017). First Descents, an adventure program for young adults with cancer: who benefits? Support Care Cancer, 25(12), 3665-3673. doi: 10.1007/s00520-017-3792-7

Zebrack, B. J. (2011). Psychological, social, and behavioral issues for young adults with cancer. Cancer, 117(10 Suppl), 2289-2294. doi: 10.1002/cncr.26056

Zebrack, B. J., Oeffinger, K. C., Hou, P., & Kaplan, S. (2006). Advocacy skills training for young adult cancer survivors: the Young Adult Survivors Conference at Camp Māk-a-Dream. Support Care Cancer, 14(7), 779-782. doi: 10.1007/s00520-005-0906-4

Zeltzer, L. K., Recklitis, C., Buchbinder, D., Zebrack, B., Casillas, J., Tsao, J. C., . . . Krull, K. (2009a). Psychological status in childhood cancer survivors: a report from the Childhood Cancer Survivor Study. J Clin Oncol, 27(14), 2396-2404. doi: 10.1200/JCO.2008.21.1433

Zeltzer, L. K., Recklitis, C., Buchbinder, D., Zebrack, B., Casillas, J., Tsao, J. C., . . . Krull, K. (2009b). Psychological status in childhood cancer survivors: a report from the Childhood Cancer Survivor Study. J Clin Oncol, 27(14), 2396-2404. doi: 10.1200/JCO.2008.21.1433